Governance and Environmental Implications

Question: Discuss about the Governance and Environmental Implications. Answer: Introduction Ichthyosis is a rare skin disorder that can be identified by dry, thickened and scaly-like skin. This kind of disease is rare in nature and affects only a few people in the world. However, the most common of them is Ichthyosis vulgaris, which is known to affect one out of 250 people (Getz Page, 2016). The people who suffer from this disease have many social and psychological effects, as their skin tends to lose moisture and become dry and rigid. Some of the patients have trouble in closing their eyes as the skin around that place become very hard. It makes the eyelids to turn outward and expose the soft skin inside, which leads to irritation and impaired vision on a longer run (Chang Reyes, 2014). The event that was organized recently was a fund-raising charity event for the Ichthyosis disease. The location for this event was one of the main venues in Melbourne, which helped in attracting large number of audience. The event was held at The Royal Society of Victoria, which is located on La Strobe Street. The event was held on 9 May 2015. It has two hectares of open land that had easily hosted the audiences (Gofundme.com, 2017). The target market for the event was the executives and CEOs of small entrepreneurial enterprises and the big companies that were present in the locality. The event also acted as a host to a number of Non-Governmental Organizations (NGO) such as CARE Australia, ChildFund Australia, Oxfam Australia and Save the Children Australia. This helped in spreading awareness among children and the NGOs (Frew, 2014). Purpose of the Event The main objective of the event was to raise funds from the people that were supposed to come to the charity purpose. The amount that was collected was sent to the different hospitals and research centres where the disease is being researched. According to the event, the goal was to raise $3,700 out of which around $3,620 has been raised (Gofundme.com, 2017). Since there are no cure for the presently, it will be of great help in funding the researchers so that they can progress on finding a cure for it (Brown et al., 2015). Carly Findlay who is an appearance activist in partnership with Genetic Support Network (GSN) was present and hosted the event. This gave a chance to the persons and their families that are suffering from the disease to interact with numerous people who had gathered in the evening for that event. Since most of the patients were introvert in nature and avoided the public eye, this gave them a chance to explain the people about the daily problems they have to face to survive (Shiell, 2014). SWOT Analysis of the event Strengths Having a team to support the fundraising event Regular communication, which will help in updating the audience about the event (Scott, 2014) Inviting families, as they form a part of the audience Online sale of t-shirts and other merchandize that will help in creating awareness and raising funds Weakness Problem in targeting the effective donors for the event Little or no feedback on the emails and the phone calls to the target audience Getting the support in material supplies from the families (Pernecky Luck, 2013) Creating awareness of the event in the social media will take time and will lose precious time Opportunities Target the teenage group by maintaining proper communication skills Preparing questionnaires for the families and audience, which will provide valuable feedback to make the event successful Inviting the media to cover the entire event, which will help in spreading awareness Thanking the audience after the end of the event (Scott, 2014) Threats The voluntary time spend by the people is limited, which may hamper the success of the event Due to recession, the event may see a limited amount of fund There may be difficulty in getting access to the grants The media may not be interested in the event, which will limit the awareness opportunity (Pernecky Luck, 2013) (Source: Created by the Author) Analysis of the event The disease is so rare that many few people know about the conditions that the patients face. On a global basis, these kinds of events have been done in United Kingdom and United States, which has helped in raising awareness among the local people. On a regional context, this event was the first time that it is being held in Australia. The Melbourne event saw a gathering of around six hundred people, which helped in spreading awareness of the disease in that area (Shiell, 2014). The role of the event was to help in knowing the patients better in and around the area, as they were all invited to the event. The people had shared their experiences with the audience, which helped in spreading of knowledge about the disease. This gradually helped in getting to know more about the disease by the common people, which would in turn help in identifying the disease if it happens to their family members (Jones, Newsome Macbeth, 2016). Based on the SWOT analysis that has been done above, it is clear that a team was required to make the event successful. To make the events successful in the future, use of advanced technologies will provide a great boost. It will help in catering better to the audience as their individual demands can be well looked after. Events like these need to be crowd funded, which will show that they have interest in spreading awareness about the diseases in the society. The planning of the events need to be done in advance so that maximum exposure can be received, which will help in making the event a success. Conclusion Thus, it can be concluded that the event was a success in the Melbourne area and was able to collect a good amount of fund. This would help the research process to continue and find some remedy for the disease. As many people had attended the event in Melbourne, it helped in getting a good number of audiences along with the potential donors. In this way, the people in Australia got aware and came to know more about the disease, which helped them in spreading knowledge in the future. 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